This is my Howler. She is a little over four years old. She's been described by friends as perpetual emotion, cute as a Gerber baby, and a ball of energy.
She screamed and cried a lot as a baby and toddler. Not that you could tell from these pictures. She has always been very alert and always watching what everyone is doing. At some point around a year and a half she decided she could only wear dresses. She was very quiet, but babbled and talked in her own language.... when she wasn't screaming.
At three the only food word she had was "eat" and she would repeat it louder and louder until we figured out what she wanted to eat. She had two dozen words or so that she used regularly and most were not intelligible to other people. Her frustration with me and her sisters was growing. We had agreed if she hadn't made a leap in her ability to speak by the time she was three we would pursue help.
Had I realized how long wait lists were for these things I would have started earlier. Her first hearing test was at 3 years and 3 months. She was uncooperative and in the end the audiologist stopped the test and asked us to go home, practice the game and come back in a couple of weeks. Of course the next available date was over a month away. We tried to practice the hearing game, but she was not interested. I ended up cancelling the next hearing test.
Meanwhile, I started calling around to find a speech therapist. I landed on one with a four to six month waiting list. They are nearby and everyone says great things about them. They sent me a novel to fill out on my daughter. It took me a week to finish. Well, maybe not literally, but it felt like it. Then before I had a chance to mail it back Howler got a hold of it and destroyed it. She drew all over it, cut it into pieces, and made it rather unusable.
It was November at this point and I took it as a sign we needed to wait. She was making progress with me at home. She had quite a few more words, including farm animals, foods, and her sister's names. I couldn't possibly take on another thing with a newborn coming anyway so I waited until January before contacting them about resending the novel for me to fill out. The wait this time, three or four months. Keep in mind this isn't for therapy this is just to meet with someone to evaluate her speech delay. THEN you go on the therapy waiting list.
Fortunately, a friend of mine suggested another speech therapist and they could see her quickly for the evaluation which would get us on the therapy waiting list at the place we were wanting to go to sooner. At 3 years and 10 months we finally got her speech evaluated to the tune of $400. The result, she is behind in both her ability to speak and her ability to understand speech by a little more than a year and a half. Honestly, I felt like the mom in Scrooged who says something along the lines, "$400 to tell me you don't speak. I know you don't speak!"
She has the language skills and behaviors of a two year old. Something I already knew at this point, but I had to get her evaluated in order to get her the speech therapy I knew she needed. We decided to try another speech therapist while we waited for the opening at our clinic of choice and it did not go well. We knew after one session it wasn't going to work. This therapist asked three times if Howler had been diagnosed with any behavioral issues.
Finally at a little over 4 years old she has begun speech therapy. I am incredibly happy we held out for this therapist. She is wonderful with Howler and handles her behavior perfectly with patience and understanding. However, she said the same thing the previous one did. Different acronyms were tossed around such as ADHD, ASD, and SPD. She suggested we look into occupational therapy and a neurodevelopmental psychologist.
So there is the first chapter of our long journey. I hope it can be useful to someone. If any locals want the names and numbers of the places we have used feel free to message me.




